ReMuS (Registry Multiple Sclerosis) is not only a professional tool; it is also a reliable partner in the journey with multiple sclerosis. As the only national registry in the Czech Republic, it focuses on gathering key information about multiple sclerosis and other neuroimmunological diseases. With a strong foundation of collaboration with centers of expertise across the country, its data serve not only the medical community for scientific research, but also patients seeking a better understanding of their disease and treatment options. The goal of the ReMuS registry is to contribute to the continuous improvement of patient care through the provision of key and reliable data and analyses.
More than 20 thousand patients in 15 MS centres in the Czech Republic
Královské Vinohrady University Hospital
General University Hospital in Prague
University Hospital in Motol
Thomayer University Hospital
Hospital Teplice, Regional Health, a.s.
University Hospital Pilsen
Hospital České Budějovice, a.s.
Hospital Jihlava
Pardubice Hospital, Hospital of the Pardubice Region
University Hospital Hradec Králové
University Hospital Olomouc
University Hospital Ostrava
Tomas Bata Regional Hospital
St. Anne's University Hospital in Brno
University Hospital Brno
* estimate as of 31 December 2022
Map: https://freevectormaps.com/czech-republic
The professional guarantor of the registry is the Committee of the Section of Clinical Neuroimmunology and Neurology of the Czech Neurological Society of the Czech Medical Association of Jan Evangelista Purkyně, which can also be referred to by the abbreviation SKNIL.
The joint partnership between ReMuS and SKNIL frames the current Memorandum of Cooperation. In addition, the ReMuS endowment fund has entered into cooperation agreements with 15 healthcare providers in the Czech Republic, where treatment of patients with multiple sclerosis is carried out.
Who is behind the ReMuS registry?
The ReMuS Registry was established in 2013 by IMPULS endowment fund, which has been promoting activities in the field of therapy and research of demyelinating diseases, especially multiple sclerosis, since 2000. Since April 2024, the registry has been operated as a separate non-profit organisation - ReMuS, endowment fund.
The chart below shows the data as it has historically been accrued each year to 31 December. Current data are those that have been updated at least once in the last 12 months.
The chart below shows the data as it has historically been accrued each year to 31 December. Current data are those that have been updated at least once in the last 12 months.
How is the data collection done?
Currently, the original data collection system is still in operation, with data sent twice a year from the expert centres via a secure interface to the ReMuS registry. The data collection tool is the specialised database software iMed. In the near future, however, we are preparing to switch to a solution that will allow instantaneous data transfer and analysis via one of the most secure platforms of today, Microsoft Azure.
Ethical aspects
Data entry is carried out by trained personnel on the basis of Informed consent of the patient. Each Informed Consent was prior to being put into practice approved by the Ethics Committee each of the hospitals participating in the ReMuS registry.
A world without multiple sclerosis
Our ultimate goal is to create a world where multiple sclerosis will not be an obstacle.
To help create a world without multiple sclerosis through a long-term, high-quality, secure and stable source of comprehensive data on multiple sclerosis in the Czech Republic. The ReMuS registry always goes hand in hand with the latest developments in the field and takes an active approach to finding its own innovations.
1. To map the real situation of the disease in the Czech Republic
To provide up-to-date and reliable information on multiple sclerosis in the Czech Republic.
2. Create a comprehensive picture of the effectiveness of costly treatments
Assist in research and resource planning for effective treatment.
3. Assist in the research and development of new medicines nationally and globally
Collaborate with scientific institutions and pharmaceutical companies to develop new treatments.