Welcome to the news from the world of the ReMuS registry, which monitors the course of multiple sclerosis in the Czech Republic. Here we focus mainly on news, research and information that is directly related to the registry and its results. Although we are unable to contribute new content on a daily basis, we believe you will find valuable and relevant information here..
For the presentation of the ReMuS registry at the International Congress on Neuroimmunological Diseases ECTRIMS, we have prepared a short presentation that will reveal what is hidden under the hood of this registry. Download the PDF to find out more...
A new study published in the Journal of Central Nervous System Disease provides insights into the efficacy of cladribine in the treatment of multiple sclerosis in real-world clinical practice. This paper uses data from the Czech nationwide ReMuS registry and...
The 1st Neuro-Ophthalmology Forum, held on June 20, 2024 in Prague. This congress was an important step towards deepening collaboration between neurologists and ophthalmologists. Our aim was not only to share expertise but also to develop a multidisciplinary approach in the care of patients with neuro-ophthalmological problems.
If a person is diagnosed with multiple sclerosis, it shouldn't matter whether they live in Cheb, Kolín, or Frýdek-Místek—they should receive the same care at all centers across the Czech Republic. Thanks to the ReMuS Registry...
Article doc. Anna Glaser from Karolinska Institutet, Sweden, focuses on the importance and benefits of European multiple sclerosis registries, specifically the Big Multiple Sclerosis Data Network (BMSD) project, in which ReMuS is actively involved...
On Friday, November 3rd, the 5th workshop for clinicians, nurses, and registry administrators from all MS centers in the Czech Republic took place. Held at the Hermitage Hotel in Prague, the workshop covered topics such as safety monitoring using the MedDRA, ongoing projects...
On the stage of the refectory of Emmaus Abbey, during one evening in November, all those who were not only at the birth of the ReMuS Registry, but also its successors, gathered. Musical accompaniment was provided by the singer Kateřina Marie Tichá with her band Bandjeez and guests.
A team led by Richard Nicholas focused on how healthcare systems in different countries affect the clinical diagnosis and treatment access for multiple sclerosis...
Original paper from Pavel Hradílek, MD, Ph.D. from the University Hospital Ostrava based on data from the ReMuS registry was published in the professional journal Multiple Sclerosis and Related Disorders. Because the influence of breastfeeding and it´s duration on the course of multiple sclerosis (MS) is unclear. Here we analyzed a real-world data for breastfeeding women with MS and their disease course...
Scientific paper from Tereza Hrnčiarová, Ph.D. from the 1st Medical Faculty of Charles University deals with the issue of treatment strategies in relapsing-remitting multiple sclerosis. Her work is based on data from the Czech Republic ReMuS registry and the Swedish MS Registry (SMSR). It follows the work of...
In anticipation of World Multiple Sclerosis Day (MS), the ReMuS patient registry held its traditional press conference on May 25, 2023. During the conference, the most up-to-date data on MS and the practical achievements made over the 10 years of the ReMuS registry's existence were presented...
Multiple sclerosis is a serious neuroimmunological disease and data on its incidence and treatment are systematically and longitudinally evaluated by the national ReMuS registry. Trends in the treatment of patients in the Czech Republic were discussed by Dominika Šťastná, MD, Ph.D. from the General University Hospital in Prague in her...
Secondary progressive multiple sclerosis (SPMS) represents a significant phase in the development of multiple sclerosis, but it is often difficult to diagnose accurately. A study conducted in five European countries utilized objective classifiers to determine the proportion and characteristics of SPMS in various multiple sclerosis patient registries, including the national ReMuS Registry. The findings suggest that...
In a recent study published in the journal Multiple Sclerosis and Related Disorders researchers examined the risk of relapse in patients with multiple sclerosis (MS) and neuromyelitis optica (NMOSD) after vaccination against COVID-19 and after undergoing COVID-19. The study looked at data from the Czech national ReMuS registry and showed...
Multiple sclerosis can also affect children, although it is a rarer form of the disease. Approximately 3-10% of patients develop multiple sclerosis before the age of 16. This study focuses on the analysis of a cohort of paediatric patients with relapsing multiple sclerosis who started treatment with disease-modifying drugs...
Pregnancy in patients with multiple sclerosis (MS) requires special care, particularly with regard to decision-making regarding disease-modifying disease (DMD) treatment and counselling regarding the period of conception, pregnancy and the postpartum period. This study aims to analyse the impact of pregnancy, childbirth or miscarriage on the course of multiple sclerosis...
he emergence of the novel coronavirus COVID-19 has raised concerns about the course of this disease in patients with multiple sclerosis (MS) and neuromyelitis optica spectrum disorder (NMOSD). This study aimed to evaluate the incidence, severity, and risk factors for a more severe course of COVID-19 among patients with MS and NMOSD...
Exactly 1,918 patients with multiple sclerosis (MS) who have also contracted coronavirus are being closely monitored by doctors in the ReMuS Multiple Sclerosis Patient Registry. Since March last year, they have been investigating the symptoms, treatment and possible impact of coronavirus on this specific group of people. Initial analyses show that MS is not a risk factor, but patients who are older, have more severe neurological impairment, are obese and also have some type of chronic therapy are at higher risk...
Although more than a dozen disease-modifying treatments (DMTs) are available for relapsing forms of multiple sclerosis (MS), treatment interruptions, switches, and discontinuations are common challenges. This study focuses on describing treatment interruptions and discontinuations within the Big Multiple Sclerosis Data Network. Under the leadership of Prof. Jan Hillert from Sweden's Karolinska Institutet, data from five clinical registries covering a 20-year period...
Multiple sclerosis (MS) is a chronic inflammatory and neurodegenerative disease of the central nervous system. After the first demyelinating event, well-established drugs...
In a review article in the professional journal Neurologie pro praxi the professional guarantor of the ReMuS registry focused on presenting the ReMuS registry and, in particular, the range of data it contains. The article also provides insight into the representation of patients in individual MS centers across the Czech Republic, the development of the use of highly effective medicinal products, and the critically important area of...
A new article in the professional journal Remedia provides insights into what can be found in the data of the Multiple Sclerosis Patient Registry ReMuS after six years of operation, as well as in the real clinical practice of the Czech Republic. Since its inception, records of...
Proper management of multiple sclerosis treatment requires feedback from clinical practice, which is provided by registries. This article focuses on introducing the Czech national multiple sclerosis registry, ReMuS, and examines the availability and use of disease-modifying drugs ...
In its five years of existence, the Czech national registry of multiple sclerosis patients, ReMuS, has become an invaluable source of data for both clinical practice and research. This article provides an overview of how the registry has developed since its inception in 2013...
In 2018, an updated mapping of multiple sclerosis (MS) registries in Europe was conducted, building on a previous survey from 2014. This survey includes 19 registries, mostly from Europe, and provides detailed information on the organization, data collection methods, quality control mechanisms, and funding of these registries...
Multiple sclerosis (MS) is a chronic inflammatory demyelinating and neurodegenerative disease affecting the central nervous system. Interferon (IFN) β-1a 44 μg, dimethyl fumarate (DMF), and fingolimod are established medications for the treatment of relapsing-remitting MS (RR MS). The aim of this project, which includes an analysis of data from the ReMuS registry, was...
The article by Dr. Dana Horáková, published in Multiple Sclerosis News offers a detailed look at the creation and development of the Czech national registry of multiple sclerosis patients, ReMuS, since its establishment in 2013. Readers will find information on the structure of the registry, the data collection process, and...