The article by Dr. Dana Horáková, published in Multiple Sclerosis News offers a detailed look at the creation and development of the Czech national registry of multiple sclerosis patients, ReMuS, since its establishment in 2013. Readers will find information on the structure of the registry, the data collection process, and how the registry has gradually expanded to include over eight thousand patients across 14 specialized centers in the Czech Republic. The article also provides an overview of key outputs from the registry, including demographic data, information on disease progression, treatment types, and the employment status of patients. Additionally, it addresses the importance of long-term patient monitoring and outlines plans for the future expansion of the registry and improvements in the quality of the collected data.
Get to know the ReMuS registry
18. 9. 2024
