On the occasion of World Multiple Sclerosis Day (30 May) the ReMuS registry publishes fresh data, which confirm a significant shift in the care of MS patients in the Czech Republic. At a joint press conference of the endowment funds ReMuS and IMPULSE It was presented by the directors of both organisations and leading Czech neurologists in the field of multiple sclerosis – Prof. MUDr. Eva Kubala Havrdová, Dr.Sc. and Prof. MUDr. Dana Horáková, Ph.D.
Most newly diagnosed patients — 84 per 100,000 in total — now start treatment straight away with highly effective drugs. Ten years ago, the figure was just 5 to 10 per 100,000. Early implementation of modern therapy significantly slowing disease progression and reducing the risk of developing permanent neurological disability.
The positive trend is also confirmed by the shortening of the time from the first symptoms to the start of treatment – from 7.5 months in 2024 to 6.4 months last year. Patients reach specialised centres on average within 3–4 months of the first symptoms, with this time shortening by approximately one month in the last year.
The ReMuS register is unique in Europe in its scope and data content – it collects information about patients from all 15 specialist centres for the treatment of multiple sclerosis in the Czech Republic. A total of data has been collected in it 24,696 MS patients, whose experiences help research and other people with this illness. From this In 2025, 21,760 patients visited their RS centre. and thus provides the most up-to-date picture of the course of the disease and its treatment. Women account for 70.8% of patients, and the average age at the onset of symptoms is 33.1 years. (Current figures and data overview are available on the page About the registry.)
Speaking at the press conference were
prof. Eva Kubala Havrdová, MD, D.Sc.
General University Hospital in Prague
prof. Dana Horáková, MD, Ph.D.
General University Hospital in Prague
Jiří Drahota, M.Sc.
ReMuS Register
Ing. Jitka Špánková
IMPULS, Foundation
The future of diagnostics is opening up to new directions. A project is underway at the 1st Faculty of Medicine of Charles University and in the General University Hospital in Prague, in cooperation with the Czech Technical University, which analyses patients' speech and can detect even slight changes in their health status. Concurrently, research into so-called radiologically isolated syndrome (RIS) is being developed, which could to enable intervention even before the onset of disease symptoms. The ReMuS registry will be pilotly linked with centre laboratory data in subsequent steps, and in the last year, the first research project within the nationwide MRI imaging repository was also realised, aiding in the acquisition of new insights into multiple sclerosis and other related diagnoses. Despite this progress, multiple sclerosis remains a serious and incurable disease. An estimated 26,000 people in the Czech Republic live with it.
Behind every advance in recent years, there lies long-term effort and the trust of many people. Our sincere thanks go out, first and foremost, to the patients, to those who provide their data to the registry, to the doctors and researchers from all Multiple Sclerosis treatment centres, to the long-term partners of ReMuS, and to the entire registry team — without their collective work, support, and trust, none of these achievements would have been possible.
Press Release
Photo gallery from the press conference (Print-quality photographs available for download here)
We would like to thank our partners for their support of the press conference
